| International Charter of principles for sharing bio-specimens and data D Mascalzoni, ES Dove, Y Rubinstein, HJS Dawkins, A Kole, ... European Journal of Human Genetics 23 (6), 721-728, 2015 | 145 | 2015 |
| ‘You should at least ask’. The expectations, hopes and fears of rare disease patients on large-scale data and biomaterial sharing for genomics research P McCormack, A Kole, S Gainotti, D Mascalzoni, C Molster, H Lochmüller, ... European Journal of Human Genetics 24 (10), 1403-1408, 2016 | 83 | 2016 |
| Improving the informed consent process in international collaborative rare disease research: effective consent for effective research S Gainotti, C Turner, S Woods, A Kole, P McCormack, H Lochmüller, ... European Journal of Human Genetics 24 (9), 1248-1254, 2016 | 79 | 2016 |
| The development of antisense oligonucleotide therapies for Duchenne muscular dystrophy: report on a TREAT-NMD workshop hosted by the European Medicines Agency (EMA), on … Neuromuscular Disorders 20 (5), 355-62, 2010 | 62 | 2010 |
| Therapeutic misconception: hope, trust and misconception in paediatric research S Woods, LE Hagger, P McCormack Health care analysis 22, 3-21, 2014 | 41 | 2014 |
| Disputing the ethics of research: the challenge from bioethics and patient activism to the interpretation of the Declaration of Helsinki in clinical trials S Woods, P McCormack Bioethics 27 (5), 243-250, 2013 | 37 | 2013 |
| Precaution, governance and the failure of medical implants: the ASR(TM) hip in the UK M Wienroth, P McCormack, TJ Joyce Life Sciences, Society and Policy 10, 1-16, 2014 | 31 | 2014 |
| The risks of therapeutic misconception and individual patient (n= 1)“trials” in rare diseases such as Duchenne dystrophy A Aartsma-Rus, P Furlong, E Vroom, GJ van Ommen, E Niks, C Straathof, ... Neuromuscular disorders 21 (1), 13-15, 2011 | 29 | 2011 |
| Guidance in social and ethical issues related to clinical, diagnostic care and novel therapies for hereditary neuromuscular rare diseases:“translating” the translational P McCormack, S Woods, A Aartsma-Rus, L Hagger, A Herczegfalvi, ... The Ethical Challenges of Emerging Medical Technologies, 259-275, 2020 | 24 | 2020 |
| Delivering genomic medicine in the United Kingdom National Health Service: a systematic review and narrative synthesis C Pearce, E Goettke, N Hallowell, P McCormack, F Flinter, C McKevitt Genetics in Medicine 21 (12), 2667-2675, 2019 | 19 | 2019 |
| Setting up strategies: patient inclusion in biobank and genomics research in Europe P McCormack, A Kole Orphanet Journal of Rare Diseases 9 (Suppl 1), P2, 2014 | 9 | 2014 |
| Virtually History: The Use of On-line Communications in Higher Education P McCormack Ann Arbor, MI: MPublishing, University of Michigan Library, 1999 | 4 | 1999 |
| Consent, collaboration and cures: the views of rare disease patients on systems for sharing data and biospecimens P McCormack, A Kole, C Turner, S Woods Rare Disease Joint Projects Meeting 2015, 2015 | 3 | 2015 |
| From embodiment to evidence: the harmful intersection of poor regulation of medical implants and obstructed narratives in embodied experiences of failed metal-on-metal hips P McCormack Health, 13634593231179026, 2023 | 1 | 2023 |
| New recommendation on biological materials could hamper muscular dystrophy research P McCormack, S Woods PLoS Currents 8, 2016 | 1 | 2016 |
| The therapeutic misconception, decision making and informed consent: The ethics of trial participation for neuromuscular disorders P McCormack, S Woods, L Hagger Neuromuscular disorders: NMD 22 (2), 191-192, 2012 | 1 | 2012 |
| Fortress education: A study of widening participation in an elite UK University P McCormack University of Newcastle upon Tyne, 2003 | 1 | 2003 |
| Correction: Delivering genomic medicine in the UK National Health Service: a systematic review and narrative synthesis C Pearce, E Goettke, N Hallowell, P McCormack, F Flinter, C McKevitt Genetics in Medicine 21 (12), 2846, 2019 | | 2019 |
| Rare Disease, Big Data: the views of rare disease patients on systems for sharing data and biospecimens P McCormack European Conference on Rare Diseases and Orphan Products (ECRD 2016), 2016 | | 2016 |
| A mile in my shoes: the experiences of ASR hip patients and their families P McCormack, M Wienroth, C Hopkins, T Joyce 14th EFORT Congress 2013, 2013 | | 2013 |
Simon WoodsProfessor of Bioethics Newcastle UniversityVerified email at ncl.ac.uk
